Research Overview

Thanks to the dedication of our brilliant Project Nightingale participants, we now have a dataset of daily self-reported symptoms and behaviours for approximately 200 people with axial SpA. And the dataset just keeps growing! In 2022, we will be entering our fourth year of the project and are excited for what's to come. On this page, you can stay up to date with all of our currently published articles. Although there may not be too many at the moment, we have a team of researchers currently working with the data and have exciting results hopefully coming soon.

Conference papers

International Congress on Spondyloarthritides, September 2021
Radiographic versus non-radiographic axial spondyloarthritis: comparison of daily self-reported flare experience
Barnett, R., Ng, S., Cavill, C. & Sengupta, R., 31 Aug 2021.
https://www.clinexprheumatol.org/abstract.asp?a=17839

EULAR, June 2020
Daily self-reported flare profiles in axial spondyloarthritis: Associations between flare, symptoms and behaviour.
Barnett, R., Ng, S., Jones, S., Young, M. & Sengupta, R., 5 Jun 2020.
https://ard.bmj.com/content/79/Suppl_1/744.1

BSR, April 2020
P274 Association of self-reported symptoms and behaviour in axSpA: initial analyses from the Project Nightingale study.
Barnett, R., Ng, S., Jones, S., Young, M. & Sengupta, R., Apr 2020.
https://academic.oup.com/rheumatology/article/59/Supplement_2/keaa111.267/5822494

Longitudinal patterns of pain distribution in axSpA patients: a retrospective cohort study
Nishtala, R., Barnett, R., Chyou, T., Soni, A. & Sengupta, R., 30 Apr 2020
https://academic.oup.com/rheumatology/article/59/Supplement_2/keaa111.262/5822429

Manuscripts

Determinants of Longitudinal Adherence in Smartphone-Based Self-Tracking for Chronic Health Conditions: Evidence from Axial Spondyloarthritis
Jones, S., Hue, W., Kelly, R., Barnett, R., Henderson, V. & Sengupta, R., 31 March 2021, In: PACM on Interactive, Mobile, Wearable and Ubiquitous Technologies.

Understanding flare in axial spondyloarthritis: novel insights from daily self-reported flare experience
Barnett, R., Ng, S. & Sengupta, R., 15 November 2021, In: Rheumatology Advances in Practice, https://doi.org/10.1093/rap/rkab082

Information for researchers

Enquiries about the Project Nightingale dataset should be directed to Rosie Barnett via rosie.barnett1@nhs.net.