2022 – A year in axSpA research! Part four
March 25, 2022
Today’s blog continues with fortnightly research updates for 2022.<br><br>The article summaries below cover topics on: 1) targeted therapies on bone in rheumatic and musculoskeletal diseases, 2) facet …
2022 – A year in axSpA research! Part three
March 11, 2022
Today’s blog continues with fortnightly research updates for 2022.<br><br>The article summaries below cover topics on: 1) people’s experience of living with axial spondyloarthritis (axSpA) and …
2022 – A year in axSpA research! Part two
February 24, 2022
I hope everyone is keeping safe in this stormy weather.<br><br>Today’s blog continues with research updates for 2022. Below are a few articles from February 2022. The topics include 1) satisfaction …
2022 – A year in axSpA research! Part one
February 9, 2022
I hope you enjoyed reading the 2021 series of the blog article summaries.<br><br>We have finally caught up, and are now in the first of the 2022 series! This blog is based on an article from Project …
2021 – A year in axSpA research! Part four
January 27, 2022
I hope everyone is managing to stay well during these frosty mornings.<br><br>Today’s blog continues with research updates for 2021- October to December. Below are some article summaries on various …
2021 – A year in axSpA research! Part three
January 11, 2022
Hello Everyone!<br><br>Wishing you all a Happy New Year! I hope you had a lovely time over the festive period.<br><br>This is the first blog of 2022! During the course of the year, we will again …
2021 – A year in axSpA research! Part two
December 22, 2021
Hello Readers!<br><br>What an interesting year it has been, and thank you for bearing with us as we resumed our research update blogs!<br><br>This year we have seen a manuscript published that reports …
2021 – A year in axSpA research! Part one
December 8, 2021
I hope all of our readers are well, and continuing to keep safe.<br><br>Today’s blog is the latest in the publication updates, and we have made it to 2021! For those who are new to the Project …
Understanding flare in axial spondyloarthritis: novel insights from daily self-reported flare experience
December 7, 2021
We hope that you are all having a good week! This week we have a bonus blog, as excitingly, our first full journal article utilising data from Project Nightingale has now been accepted for publication …
2020 – A year in axSpA research! Part five
November 10, 2021
I hope you are all well and enjoying the revival of the Project Nightingale blogs! The <a href="https://www.projectnightingale.org/blogs/my-as-my-life/">last</a> blog post was to inform you about NASS …
My AS, My Life
October 13, 2021
We hope that you are all having a good week.<br><br>Some of you who were following our blogs last year may remember us speaking about the incredible NASS (National Axial Spondyloarthritis Society) …
Act on Axial SpA campaign- A Gold Standard Time to Diagnosis
September 29, 2021
I hope everyone is having a good week so far 😊<br><br>Today’s blog is to share with you information about a new exciting national campaign which was officially launched by the National Axial …
2020 – A year in axSpA research! Part four + Introducing our new research assistant
September 15, 2021
My name is Nuzhat, a new Research Assistant at the University of Bath. You may have seen Rosie’s blogs about the team hiring a new Research Assistant, and I’m very happy to announce that it’s me!<br>
Updates March 2021
March 28, 2021
Happy Sunday! We hope that you are keeping well and having an okay week, despite the grim weather. Not long to go now until hopefully a bit of a break over Easter weekend.<br><br>Some Project …
Updates February 2021
February 28, 2021
Hi everyone,<br><br>We hope that you are all keeping well. And managing to enjoy some of this beautiful sunshine!<br><br>Sorry that we have been rather quiet of late. But we have been working on some …
Upadacitinib EMA approval
February 7, 2021
I hope that you are all having a lovely weekend (or as much as it can be at the moment!). Some exciting news this week – a new drug called Upadacitinib has been approved by the European Medicines …
First blog post of 2021!
January 24, 2021
After a very long break. We hope that you all had a restful Christmas & New Year – although it feels like so long ago now. And that you are keeping safe and doing okay during this ongoing crazy …
Support during the Christmas period
December 13, 2020
Hi everyone,<br><br>The festive season can be an incredibly difficult and stressful time for many - and of course, particularly strange/challenging this year.<br><br>As such, in the lead up to …
COVID-19 in axial spondyloarthritis care provision
December 6, 2020
A couple of weeks ago, we discussed the impact that rheumatology research has had on the current pandemic (see: <a …
Additional resources to help you manage your axial SpA from home
November 29, 2020
We hope that you are all having a good week – quite exciting with the freezing fog!!<br><br>Upon receiving the unfortunate news that the majority of us are remaining in Tier 2 for the next few weeks, …
2020 - A year in axSpA research! Part three
November 22, 2020
I hope that you are having a lovely weekend.<br><br>Following on from last week, today’s blog post focuses on 4 additional publications from April – June, that didn’t quite fit with the themes covered …
Smartphone BASMI measurement survey
November 21, 2020
<br>I hope you are having a great start to the weekend! <br><br>You may have recently seen a post by one of our team, Dr Simon Jones, circulating twitter last weekend - regarding a survey to help us …
2020 – A year in axSpA research! Part two
November 15, 2020
Hi everyone,<br><br>I hope that you are all safe and well and enjoying this lovely Sunday morning!<br><br>Today’s blog post is part two in our 2020 research summary – providing updates from April 2020 …
Resources for additional support during lockdown 2.0
November 8, 2020
Hello everyone,<br><br>We hope you are having a good weekend and have managed to enjoy some of this lovely Autumnal weather! Indeed, we are living in some very unusual times. However, it has been …
2020 – A year in research! Part one
November 1, 2020
2020 – A year in axSpA research! Part one Hi everyone – if you are new to the blog, then welcome! I hope that everyone is keeping well and having a good weekend. Over the next couple of blog posts, we …
Special supplement within the journal “Rheumatology”
October 18, 2020
Special supplement within the journal “Rheumatology” Hi everyone – if you are new to the blog, then welcome! I hope that everyone is keeping well during these strange times. In rather exciting news, …
And the new website is live!
October 9, 2020
And the new website is live! Sorry to have been rather quiet over the past month - and especially so after attempting to get back into the swing of things with the regular blog posts! Unfortunately, …
And we are finally back with the regular blog posts…
September 6, 2020
And we are finally back with the regular blog posts… Hi everyone – if you are new to the blog, then welcome! I hope that everyone is keeping well during these strange times. 2020 has been a bit of a …
December AxSpA Research Highlights – Part Two
February 3, 2020
December AxSpA Research Highlights – Part Two Hi everyone, I hope you have all had a lovely weekend! This is our second post in the 2-part December axSpA research highlights series: with the previous …
December AxSpA Research Highlights – Focus on Physical Activity
January 29, 2020
Hi everyone, I hope you are all having a good week! This is the first research highlights post of the New Year, so Happy New Year to you all.For December’s research highlights (although by now, …
NASS and AStretch video series
January 11, 2020
Hi everyone! We hope you are having a good week. Quick update – NASS and AStretch have now released a series of videos on their Youtube, featuring people with axial spondyloarthritis (axSpA – …
John Wilkinson: No holding us back
January 9, 2020
John Wilkinson: No holding us back I had my latest check up at Bath recently and Raj encouraged me to write something for the Project Nightingale blog. Challenge accepted! I am John Wilkinson. I’m 56 …
November AxSpA Research Highlights
December 11, 2019
November AxSpA Research Highlights Hi everyone, I hope you are all having a good week! Below is a summary of some of November’s axial spondyloarthritis (axSpA) research highlights, following on nicely …
October axSpA Research Highlights
November 19, 2019
October axSpA Research Highlights Hi everyone, I hope you have all had a good weekend! Below is a summary of some of October’s research highlights, including the development of ASAS quality standards …
Participant experience of Project Nightingale
November 18, 2019
Recently we had one of our participants, Peter Stanley, kindly come in to talk about his experiences using Project Nightingale.<br><br>Peter was first diagnosed with Ankylosing Spondylitis (AS) around …
7th Bath, Bristol and Weston Combined Axial Spondyloarthropathy Meeting
November 16, 2019
7th Bath, Bristol and Weston Combined Axial Spondyloarthropathy Meeting Hi all! You may be interested to hear that last week was the 7th Bath, Bristol and Weston Combined Axial Spondyloarthropathy …
NASS guide to managing axial SpA flares
November 11, 2019
NASS guide to managing axial SpA flares Hi everyone! I hope you all had great weekend. Just a quick update today to say that excitingly, the National Axial Spondyloarthritis Society (NASS – …
Cloudy with a chance of pain?
October 24, 2019
Cloudy with a chance of pain? Some of you may have heard of, or even participated in the Cloudy with a chance of pain study at the University of Manchester – investigating relationships between …
Axial spondyloarthritis – What is axSpA and how does it relate to Ankylosing Spondylitis?
October 17, 2019
Axial spondyloarthritis – What is axSpA and how does it relate to Ankylosing Spondylitis? Axial spondyloarthritis, non-radiographic spondyloarthritis, spondyloarthropathies… What exactly does it all …
BRITSpA Annual Scientific Meeting
September 27, 2019
BRITSpA Annual Scientific Meeting What a brilliant couple of days at the BRITSpA Annual Scientific Meeting! Thank you to all the fantastic speakers. It was a pleasure to be a part of the two days. …
AS Information Day
September 19, 2019
AS Information Day Hi everybody! If you are looking at this for the first time today, then welcome. It was great to talk to some of you at the BIRD AS Information Day – thank you so much for coming. I …
Research update!
Research update! Stanley Ng from White Swan has been analysing the latest Project Nightingale data and has produced our second round of results – assessing the correlations/relationships within the …
Initial findings from the Project Nightingale study
September 9, 2019
Initial findings from the Project Nightingale study We are pleased to announce that we have been invited to present a poster at the BRITSpA (British Society for SpondyloArthritis) Annual Scientific …
First blog post
September 7, 2019
First blog post Hi, We are really excited to introduce to you the Project Nightingale blog, where we hope to keep you informed on research updates and events at the Royal National Hospital for …